Welcome to FistulizingCrohns.com 

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First: If you're looking for information after an incision and drainage (I&D) for your first perianal abscess, don't panic! You’ll find aftercare instructions here to help prevent recurrence. Many surgeons perform I&D without providing wound care information, so we've got you covered.

Remember, having a perianal abscess doesn't necessarily mean you have fistulizing perianal Crohn's Disease. Even having a fistula doesn't confirm Crohn's Disease. Perianal abscesses often result from clogged anal crypt glands. When an abscess forms, pressure builds, and the body tries to find an outlet.

Perianal abscesses are typically located in the fat layers, similar to a porous household sponge. Imagine putting a cracked egg between sponges and applying pressure—the egg whites will push through the sponge's holes. This expansion pressure creates the fistula tract. Therefore, not everyone with perianal abscesses and fistulas has perianal Crohn's. Recurring abscesses don’t necessarily mean Crohn’s, either.

Patients often have several questions about fistulizing perianal Crohn's disease. Here are some common ones:

  1. What is fistulizing perianal Crohn's disease?

    • Fistulizing perianal Crohn's disease is a type of Crohn's disease where fistulas form around the anus. Fistulas are abnormal connections between different tissues.

  2. What are the symptoms?

    • Symptoms can include pain, swelling, and discharge near the anus, as well as general Crohn's symptoms like abdominal pain, diarrhea, and weight loss.

  3. How is it diagnosed?

    • Diagnosis typically involves a combination of physical exams, imaging tests like MRI or CT scans, and sometimes endoscopic procedures.

  4. What causes fistulas to form?

    • Fistulas form due to inflammation that creates sores or ulcers, which then extend through the intestinal wall to other tissues.

  5. What are the treatment options?

    • Treatment can include antibiotics, biologic medications, and surgical interventions like seton placement to manage infection and inflammation.

  6. Can fistulizing perianal Crohn's disease be cured?

    • While there is no cure, treatments can help manage symptoms and improve quality of life.

  7. What lifestyle changes can help?

    • Maintaining a healthy diet, managing stress, and working closely with a healthcare team can help manage the condition.

  8. Is it common to have recurring abscesses or fistulas?

    • Yes, it is common for abscesses and fistulas to recur, but this does not necessarily mean the condition is worsening.

Patients with fistulizing perianal Crohn's disease often have several concerns, including:

  1. Pain and Discomfort: The physical pain and discomfort caused by abscesses and fistulas can be significant and affect daily activities.

  2. Recurrence: Many patients worry about the recurrence of abscesses and fistulas, even after treatment.

  3. Infection: The risk of infection is a major concern, as it can lead to further complications and require additional medical interventions.

  4. Impact on Quality of Life: The condition can significantly impact a patient's quality of life, including their ability to work, socialize, and engage in physical activities.

  5. Emotional and Mental Health: Patients often experience stress, anxiety, and depression due to the chronic nature of the disease and its impact on their lives.

  6. Body Image and Intimacy: Concerns about body image and intimacy are common, as the condition can affect a patient's self-esteem and relationships.

  7. Treatment Side Effects: Patients may worry about the side effects of medications and surgical treatments, including potential complications and long-term effects.

  8. Access to Care: Ensuring access to specialized care and support can be a concern, especially for those living in remote areas.

At the bottom of every page, you will find a site map directing you to different sections. I will continuously add new pages over time. I've dedicated countless hours to researching the best treatments, surgical procedures, and wound care methods. The articles I post are easy to read and selected from the best medical journals, written by doctors.

When I first started my research, finding reliable information on complex fistulizing Crohn's was difficult. Even when I found credible sources, like the NIH, my doctors often ignored them. My colorectal surgeon performed overzealous procedures, with 60 operations in 5 years, and my case was considered the most aggressive at UW Madison Hospital. She made man-made fistulae by performing definitive procedures too soon, leading to substandard care.

My goal is to provide patients with the tools to avoid my experiences. Unfortunately, my story, while extreme, is not unique.

Feel free to contact me below to share your story,

treatments you've had and anything you think would help the rest of us fighting this disease