Welcome to FistulizingCrohns.com

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-FIRSTJust as a general note if you are searching for information because you have had an incision and drainage for your first Perianal abscess, don’t PANIC!!!!! However, you will find aftercare instructions here that will hopefully keep you from having a recurrence because many surgeons just do the I&D and send you on the way, not giving you information on how to care for the wound they just made. So, remember having a perianal abscess doesn’t necessarily mean that you have Fistulizing perianal Crohn’s Disease, Even having a fistula doesn’t mean that you have Fistulizing Crohn’s Disease. Perianal abscesses are thought to be caused by clogged anal crypt glands. When you have an abscess, the pressure builds, and your body wants to try to find a way out. Perianal abscesses are Generally in the fat layers and to describe fat it is much like a porous household sponge simply speaking. Imagine that you put a cracked egg between sponges and apply pressure the egg whites will start pushing their way through the holes of the sponge, that pressure of the abscess getting bigger and trying to find a way to expand is what forms the fistula tract. In a very basic description. Hence the reason that not all people with Perianal abscesses with fistulas have perianal Crohn’s. People can also have abscesses reoccur and that does not necessarily mean Crohn’s as well.

At the bottom of every page you will Find a site map which will direct you do the different pages. I will be adding more pages as time goes by. I have spent countless hours researching the best treatments, surgical procedures, and the best way to care for wounds. The articles I post are the easiest to read, and I have chosen a selection of the best articles. All articles are from Medical Journals written by doctors.

At the time I started researching I had problems finding good information on Complex Fistulizing Crohn's, and when I did, my doctors would not listen to what I would find even when I printed it out and it clearly said the NIH. My Colorectal surgeon was very head strong and did overzealous cutting, Having 60 procedures in 5 years. She attempted definitive procedures weeks after setons were placed instead of letting the fistula tract mature and even before the abscesses stopped forming. I was told that my case was the most aggressive case any of the doctors at the UW Madison Hospital had ever seen. Personally, in Hindsight, now that I am not on constant recovery from anesthesia and have read my report, She made manmade fistulae and my care was substandard. My goal is to give any patient reading this the tools, so they do not end up like me, and the scary thing is my story is not necessarily all that unique though it does seem to be quite extreme.

Feel free to contact me below to share your story,

treatments you've had and anything you think would help the rest of us fighting this disease